Paving Pathways for Tomorrow
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Our Purpose:

To bring awareness to the world community about the often unbearable emotional and financial burdens faced daily by single parent households as they care right in their own homes, for their children, who have rare and/or orphan illnesses.

 

Nico's Story

This video highlights the difficult and unique journey that Nico is on. It begins by showing a how Nico uses assistive technology to have his computer play a song he wrote. The rest of the video provides an overview of the challenges Nico faces day to day, the help and support he requires, and how you can make a difference by donating or volunteering.

Go Blue for Nico!

Join us as we "Go Blue For Nico!"

This year's 2nd annual memorial/fundraiser for Lieutenant Steve Maget (Nassau County Highway Patrolman who succumbed to a fierce battle against Melanoma) will be donating ALL of their proceeds this year to Paving Pathways For Tomorrow Inc., Nico Vigliotti's nonprofit foundation created to help his fight to live! Nico was diagnosed with a very rare disease as a baby... Chromosome 14 Deletion. A mix of his family, friends, and online support (#NicosArmy) we have been able to help him throughout his journey... but the fight isn't over!

Come enjoy a day of Live Music & Pipe Band, Raffles, a Cash Bar, and a Free Buffet as we join together for Nico's fight to live! Tickets are $30 each. You may purchase them online or at the door, but online purchases will automatically be entered to win a special Golf Basket valued at over $200 from "Louise Tudisco" of Remax Beyond(LouiseTudiscoHomes.com). Winner will receive their prize at the event, but only online purchases will be eligible. We really hope to see you all there, and please spread the word! #NicosArmy #PavingPathwaysForTomorrow

 DATE AND TIME  Sun, April 29, 2018 2:00 PM – 7:00 PM EDT   LOCATION  Saint James Public House 552 North Country Road Saint James, NY 11780

DATE AND TIME

Sun, April 29, 2018
2:00 PM – 7:00 PM EDT


LOCATION

Saint James Public House
552 North Country Road
Saint James, NY 11780

EDITORIAL:

There is a commercial currently running on television for one of the major drug companies pointing out their success in finding a "cure." They emphasize it begins with an idea, inspiration, and on occasional rejection. There is a great deal of scientific research, bunches of sleepless nights and all of a sudden, success looms. Next comes the testing phase and ultimately drug trials with those so afflicted in order to secure the "hoped for" result, millions now with a chance at a normal life despite their illness or disease. A Hollywood ending, yes, and a most wonderful one.

All of this is well and good for those suffering from widespread illness and disease, but unfortunately this is not at all the case for those afflicted with rare illnesses or diseases, such as those addressed by Paving Pathways for Tomorrow, Inc. There generally is no ongoing inspiration nor any major research projects. The "why" is tragic and something we all understand ... Will the new pharmaceutical be profitable ??? This is the reason we all must band together and fight for those with either no voice or one that is barely audible. We must support this cause. Single parent households trying their very best to cope with children afflicted with exceeding rare illness and/or disease, and their unyielding familial burdens.

Debbie Vigliotti, a remarkably energetic and dedicated single mom, can't fight this alone and needs our continued and combined financial help to keep her son safe ... alive. And G-d willing, made strong enough to receive and survive a much needed double lung transplant. The medical expenses never end and are astronomical, as I'm certain you must know. Funds necessary to keep a basic home together are needed as well, as her son's primary care system is at home and administered around the clock, with little help.

Hopefully, some day sooner than later, the right team of interested genetic researchers and medical doctors will come up with a way to formulate a breakthrough for Debbie's son, Nico and his illness, one that is so rare (currently, there are only two known living cases), it doesn't even have a name.

Please, I beseech you, dig deep both in voice and financially to make this actually happen. Please ... ❤️

Visit the website, read "Our Stories", and "Our Purpose"

Chip Blumberg, Creative Director